Charcot Marie Tooth

I have been off work this week on holiday and have been doing a bit of decorating. my partner Claire has been doing most of it, and I mean most of it! I have not been able to do much at all, my knees have been giving way from under me and my hips have been agony after 15-20 minutes.

This made me think back to 3 years ago when we moved into this house. I used to spend several hours at the house every day painting, up and down ladders and sleeping on an airbed with just a wooden stool to sit on before going to work the next morning and coming back to the house to start the cycle all over again the next evening.

My CMT has progresses so much in 3 years, I'm hoping the rate of progression slows down soon. One thing I know for sure, if it carries on at this rate I am going to be completely wheelchair bound in another 3 years.