*** My CMT Forum - free! Easy to use ... all welcome
charcotmarietooth.freeforums.org
*** CMT UK - CMT UK works tirelessly supporting people with CMT and trying to raise awareness of the condition. CMT UK is a great source of up to date information on the condition and various developing treatments as well as being a fountain of advice for those affected by the condition, whether directly or through having someone close with CMT.
*** Muscular Dystrophy Campaign - The Muscular Dystrophy Campaign is the only UK charity focusing on all muscle disease.
It has pioneered the search for treatments and cures for nearly 50 years and provides practical, medical and emotional support to people affected by the conditions.
(Registered Charity No. 205395 and Scottish Registered Charity No. SC039445)
*** Dr Foster Consultant Guide - This is a brilliant searchable guide to consultants in any area of expertise, all round the country. You can search by part of the body or by the consultants name should you already know it.
*** The HNPP UK Pages - A good, easy to understand description of HNPP by Jon Leonard, who has HNPP himself.
link being updated
*** HNPP.org
*** The NHS website has alot of useful resourses.
*** Cosyfeet - Cosyfeet do some great extra wide and deep footwear which are good for AFOs (in my experience). There are alot of "old person" styles! but there are a few decent shoes. I go for the mens shoes. (My feet are a size 7 EEEE).
*** I go to see Phyll Harrison on a regular basis for massage and she has helped me so much.
